data sovereignty

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Genomic Research Through an Indigenous Lens: Understanding the Expectations

Genomic Research Through an Indigenous Lens: Understanding the Expectations

Indigenous scholars are leading initiatives to improve access to genetic and genomic research and health care based on their unique cultural contexts and within sovereign-based governance models created and accepted by their peoples. In the past, Indigenous peoples’ engagement with genomic research…

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Good Data Practices for Indigenous Data Sovereignty

Good Data Practices for Indigenous Data Sovereignty

Indigenous Data Sovereignty (IDS) and Indigenous Data Governance are Indigenous-led movements and practices through which Indigenous peoples are setting their own visions for good data regarding data generated and collected by and about them. IDS movements and practices can be seen as a…

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Indigenous Data Sovereignty: Global Progression

On May 18, 2018 at the Native American and Indigenous Studies Association (NAISA) Conference in Los Angeles, six leading scholars discussed the landscape and global opportunities and challenges Indigenous peoples face in the growing Indigenous data sovereignty movement. The presentations…

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Policy Brief: Indigenous Data Sovereignty in the United States

Policy Brief: Indigenous Data Sovereignty in the United States

We live in the information age. Governments, industries, and organizations of all kinds are claiming a right to gather information on everything from our spending habits to our health records. Data has become a global currency, a valuable asset, and a source of power. Native nations are part…

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Policy Brief: Data Governance for Native Nation Rebuilding

Policy Brief: Data Governance for Native Nation Rebuilding

Native nations in the United States are increasingly exercising Indigenous data sovereignty (ID-Sov)— the right of a nation to govern the collection, ownership, and application of its own data. While ID-Sov is the goal, data governance— the ownership, collection, control,…

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Data as a Strategic Resource: Self-determination, Governance, and the Data Challenge for Indigenous Nations in the United States

Data as a Strategic Resource: Self-determination, Governance , and the Data Challenge for Indigenous Nations in the United States

Data about Indigenous populations in the United States are inconsistent and irrelevant. Federal and state governments and researchers direct most collection, analysis, and use of data about U.S. Indigenous populations. Indigenous Peoples’ justified mistrust further complicates the collection and…

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Eileen Briggs: The Importance of Data and Community Engagement

Eileen Briggs is a citizen of the Cheyenne River Sioux Tribe and is the Executive Director of Cheyenne River Sioux Tribal Ventures. She is also the Principal Investigator on "Cheyenne River Voices Research" — a reservation-wide research project including a household survey of over…